Validation of a stoma-specific quality of life questionnaire in a sample of patients with colostomy or ileostomy
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Abstract
The aim of this study was to assess the validity of a 20-item scale to measure quality of life in a sample of Spanish subjects with colostomy or ileostomy. A cross-sectional multicentresurvey was carried out in the province of Castellon between 2013 and 2014 in fourhospitals with colorectal surgery. The construct validity through confirmatory factor analysis (A.F.C) and structural equation modeling (S.E.M), and internal consistency was determined. A total of 125 patients were recruited for the study; the mean age was 66.72 years, 64% were male, 81.6% had colostomies, 85.6% were diagnosed with intestinal cancer, and 80% were autonomous in stoma care. S.E.M results suggest removing two items for proper fit of the model and two second-order factors, personal and social observed. Cronbach's ? for Stoma QoL after S.E.M and for 18 items was 0.861. The study assessed the validity of the 20-item QOL questionnaire in a sample of 125 patients with colostomy or ileostomy. The scale is a valid research tool for stomata, but the number of items could be reduced.
References
Baxter, N.N., Novotny, P.J., Jacobson, T., Maidl, L.J., Sloan, J., y Young-Fadok, T.M. (2006).A
stoma quality of life scale. Diseases of the Colon & Rectum, 49(2), 205-212.
Bond T.G, y Fox C.M. (2001). Applying the Rasch Model: Fundamental Measurement in the Human Sciences. Lawrence Erlbaum, Hillsdale, NJ.
Burns, N., y Grove, S.K. (2012). Investigación en enfermería. Madrid. España: Ed. Elsevier.
Cancio S., Coca C., Fernández I., y García M. (2014). Estudio coste efectividad de la atención
especializada en ostomía. Recuperado el 25 de septiembre de 2014, del sitio web del Consejo General de Enfemería: http://www.consejogeneralenfermeria.org/docs_revista/EstudioOstomias.pdf
Canova, C., Giorato, E., Roveron, G., Turrini, P., y Zanotti, R (2013). Validation of a Stoma-Specific
quality of life questionnaire in a sample of patients with colostomy or ileostomy. Colorectal Disease, 15(11), 692-698.
Chaura-Guindic, L., Benavides-Leon, J., Villanueva-Herrrero, J., Jiménez-Bobdilla, B., AbdoFrancis, J.M., y Hernández-Labra, E. (2011). Calidad de vida del Paciente ostomizado. Cirujía y Cirujanos, 79(2), 149-155.
Crocker L., y Algina J (1986) Introduction to Classical and Modern Test Theory. Harcourt Brace
Jovanovich, Orlando, FL. Davis, J.S., Svavarsdóttir, M.H., Pudło, M., Arena, R., Lee, Y., y Jensen, M.K. (2011). Factors impairing quality of life for people with an ostomy. Gastrointestinal Nursing, 9(Sup2),14-18.
De Frutos, R., Solís, M., Hernando, A., Béjar, P., Navarro, C., Mayo, N., y Ramírez, M. (2011).
Calidad de vida de los pacientes con colostomía e ileostomía a corto y medio plazo. Metas
De Enfermería, 14(2), 24-31.
Erwin-Toth, P., Thompson, S.J., y Davis, J.S. (2012). Factors impacting the quality of life of people
with an ostomy in north america: Results from the dialogue study. Journal of Wound, Ostomy, and Continence Nursing: Official Publication of the Wound, Ostomy and Continence Nurses Society / WOCN, 39(4), 417-22.
Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual
Disability Research, 41(2), 126-135.
Ferlay, J., Soerjomataram, I., Dikshit, R., Eser, S., Mathers, C., Rebelo, M., y Bray, F. (2015). Cancer incidence and mortality worldwide: Sources, methods and major patterns in GLOBOCAN 2012. International Journal of Cancer, 136(5), E359-E386.
Fleshman, J.W., y Lewis, M.G. (2007). Complications and quality of life after stoma surgery: A
review of 16,470 patients in the UOA data registry. Seminars in Colon and Rectal Surgery,
(1), 19-24.
Folstein, M.F., Folstein, S.E., y McHugh, P.R. (1975). “Mini-mental state”: A practical method for
grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189-198.
Fuller, J.K., y Ness, E. (2007). Procedimientos quirúrgicos. Cirugía general. En: Fuller, J.K. y Ness,
E. (Eds.). Instrumentación quirúrgica: Teoría, técnicas y procedimientos. (pp. 491-497). Madrid, España: Ed. Médica Panamericana.
George, D., y Mallery, M. (2003). Using SPSS for windows step by step: A simple guide and reference. (pp. 231). Boston: Allyn & Bacon.
Gooszen, A., Geelkerken, R., Hermans, J., Lagaay, M., y Gooszen, H. (2000). Quality of life with a
temporary stoma. Diseases of the Colon & Rectum, 43(5), 650-655.
Haapamäki, J., Roine, R.P., Sintonen, H., Turunen, U., Färkkilä, M.A., y Arkkila, P. (2010). Healthrelated quality of life in inflammatory bowel disease measured with the generic 15D
instrument. Quality of Life Research, 19(6), 919-928.
Jansen, L., Koch, L., Brenner, H., y Arndt, V. (2010). Quality of life among long-term colorectal
cancer survivors – systematic review. European Journal of Cancer, 46(16), 2879-2888.
Jenks, J.M., Morin, K.H., y Tomaselli, N. (1997). The influence of ostomy surgery on body image
in patients with cancer. Applied Nursing Research, 10(4), 174-180.
Juul, K., y Prieto, L. (2008). Quality of life with an intestinal stoma. Seminars in Colon and Rectal
Surgery, 19(3), 167-173.
Kuzu, M.A., Topçu, Ö, Uçar, K., Ulukent, S., Ünal, E., Erverdi, N., y Demirci, S. (2002). Effect of
sphincter-sacrificing surgery for rectal carcinoma on quality of life in muslim patients. Diseases of the Colon & Rectum, 45(10), 1359-1366.
Mahjoubi, B., Goodarzi, K.K., y Mohammad-Sadeghi, H. (2010). Quality of life in stoma patients:
Appropriate and inappropriate stoma sites. World Journal of Surgery, 34(1), 147-152.
Marquis, P., Marrel, A., y Jambon, B. (2003a). Quality of life in patients with stomas: The montreux
study. Ostomy Wound Management, 49(2), 48-55.
Martínez, J.C. (2015). Estudio stomalife. Calidad de vida en los pacientes ostomizados un año
después de la cirugía. Metas de Enfermería, 18(8), 5.
Nurmi, E., Haapamäki, J., Paavilainen, E., Rantanen, A., Hillilä, M., y Arkkila, P. (2013). The burden of inflammatory bowel disease on health care utilization and quality of life. Scandinavian Journal of Gastroenterology, 48(1), 51-57.
Olbrisch, M. (1983). Development and validation of the ostomy adjustment scale. Rehabilitation
Psychology, 28, 3-12.
Pieper, B., Mikols, C., y Grant, T.R.D. (1996). Comparing adjustment to an ostomy for three groups. Journal of Wound Ostomy y Continence Nursing, 23(4), 197-204.
Pittman, J., Rawl, S.M., Schmidt, C.M., Grant, M., Ko, C.Y., Wendel, C., y Krouse, R.S. (2008). Demographic and clinical factors related to ostomy complications and quality of life in
veterans with an ostomy. Journal of Wound, Ostomy and Continence Nursing, 35(5), 493.
Prieto, L., Thorsen, H., y Juul, K. (2005). Development and validation of a quality of life questionnaire for patients with colostomy or ileostomy. Health and Quality of Life Outcomes, 3, 62.
Sprangers, M., Taal, B., Aaronson, N., y TeVelde, A. (1995). Quality of life in colorectal cancer. Diseases of the Colon & Rectum, 38(4), 361-369.
Taylor, C., y Morgan, L. (2011). Quality of life following reversal of temporary stoma after rectal
cancer treatment. European Journal of Oncology Nursing, 15(1), 59-66.
Tsunoda, A., Tsunoda, Y., Narita, K., Watanabe, M., Nakao, K., y Kusano, M. (2008). Quality of
life after low anterior resection and temporary loop ileostomy. Diseases of the Colon & Rectum, 51(2), 218-222.
Yoo, H.J., Kim, J.C., Eremenco, S., y Han, O.S. (2005). Quality of life in colorectal cancer patients
with colectomy and the validation of the functional assessment of cancer therapycolorectal (FACT-C), version 4. Journal of Pain and Symptom Management, 30(1), 24-32.